effect on daily life
- When infants or children have Tay-Sachs, it affects everyone around them. They get to the point where they can no longer maintain their own breathing, swallowing, walking, etc., so they must have full-time care, whether this is given by a hospice worker or a supportive family. In adults, Tay-Sachs isn't usually life-threatening, but it hinders everyday actions. For example, the adult may be at a disadvantage in the job market because they slur and/or they can't perform skills required for most jobs, like typing. Favorite hobbies or sports can usually no longer be performed. Also, these adults usually need assistance with mobility, whether it be a cane or a wheelchair. This makes it hard to get around in a plethora of places.